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Friday, December 4, 2009
Parent/Child Focus Group with Dr. Green in NYC
I got this email today. Please share with anyone you know that has a child with Celiac Disease that might be interested in participating who is located in the tri-state area.

Thanks!


Dear parent/child:

We would like to invite you to participate in a research study that will include attending a focus group to learn issues related to living with celiac disease. The purpose of this is to learn what it feels like to live with celiac disease, not focusing on the symptoms or presentations. There will be separate groups for parents and for children. Each group will include a total of up to 10 persons and will be about 45 minutes in length. The sessions will be recorded for study purposes. The overall goal of the focus groups is to use your responses to develop a celiac disease quality of life questionnaire. We would greatly appreciate your participation.

You do not have to participate in the focus groups to receive care for your child. Participation is completely voluntary. We will keep the recordings of the sessions for as long as needed to complete the research. The recordings will not be used for any other reason.

Please contact Dr. Nicole Jordan at celiacdiseaseQOL@ yahoo.com or at 617-251-4803 if you wish to participate or should you have any further questions. If you have questions about your rights as a research subject, please contact the Institutional Review Board at 212-405-5883.

Respectfully,
Peter Green, M.D.
Professor of Clinical Medicine
College of Physicians & Surgeons
Harkness Pavilion, Suite 936
180 Fort Washignton Avenue
New York NY 10032

Nicole Jordan, M.D.
Clinical Fellow

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